Tag Archives: disability

Blog June, Day Twenty Eight

So I know I didn’t post yesterday, but unlike most of my other missing posts, I have good reason.

I have been diagnosed with Joint Hypermobility Syndrome (JHS), although I suspect I have Ehlers-Danlos Syndrome Type III (hypermobility), also known as EDS. Due to the nature of my disability, a lot of my joints become quite painful, particularly after overuse. I also get tired a lot. Right now I am working for three full days, spend a fourth day doing physio and hydro therapy, and running errands. As it stands, with four full days of activity per week, I am constantly exhausted.

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Blog June, Day 19

So I go to Kalgoorlie for the weekend to visit my family, and what do I do? forget to blog once. Urgh….I am failing miserably at Blog June.

Anyway, so today I would like to share some of my favourite web-comics!

Unshelved: Featuring Dewey, the YA librarian who rides a motorbike, and loves graphic novels.

That Deaf Guy: Which is written buy a (surprise surprise!) deaf guy and his hearing wife, about their life togeather with their son.

80 Year old Teenager: Which is written by a young woman with rheumatoid arthritis. As someone who also has a chronic pain disorder, this resonates a lot with me.

Khaos Komix: Because everyone needs a little gay in their lives.

 

The power of a diagnosis

As I mentioned in a previous post, I have mobility issues, and regularly use a combination of crutches, a cane, or a wheelchair to get around. This is because if I was on my feet for more than a few minutes, my hips, knees, feet and lower back would start complaining, and then start screaming at me. In other words, it is painful for me to stand for more than a few minutes at a time. And the worst part of it was? I didn’t know why. Every GP and orthopedic specialist I had seen could not explain why. I even once had this doctor insinuate I was faking it, just so I could use a wheelchair.

This week, after months on a waiting list, I saw a rheumatologist. Nice lady too. And within 15 minutes she gave me a diagnosis. Benign Joint Hypermobility, also known as Hypermobility Syndrome.

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Nerdy cosplay for PAX

I recently finished playing the Mass Effect trilogy, and I am so completely enamoured by the glorious Commander Shepard (the female one of course), that I decided that I wanted to make some FemShep armour for when I go to PAX in July (Sam and I are going there for our honeymoon….we are total nerds).

So today I spent a good few hours researching online how to make the armour, and see how other people made theirs.  While it was going to take a lot of time and effort, it is something I really wanted to do. For those who have never played Mass Effect 3, this is the armour I want to make, only in green.

 

FemShep_armour

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Guest post: Autism in adults, and why you should respect us

Hey all,

Today I am going to turn my blog over to my partner, Samantha Davies, who has more than a few things to say about disability and mental illness, and the way it is regarded by our society. Sam is 28, and has high functioning Autism and Bipolar Disorder.

As librarians, all of us have had clients with physical and mental disabilities come through our library, whether we realise it our not. Some are obvious (like my wheelchair), but some are much more hidden. It might be the girl who never looks you in the eye (only at your left ear), or the man who takes a few too many sick days off work due to anxiety, or the child who screams his way through Story Time no matter how hard his parents try to shush him. Disability in libraries needs to not only be acknowledged  but catered for, and respected.

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Getting a job in the information industry with a wheelchair in tow

While this blog mostly focuses on aspects of librarianship that are a little outside the box, so far most of what I have written has been primarily on providing services to the LGBTI community. Today I want to do something a bit different.

Some of you may be aware I have difficulty with mobility. I have been using crutches to walk increasingly since the beginning of 2010, and have used a wheelchair as needed since March 2012.

My current employer, FPWA Sexual Health Services, does not have an issue with this. Considering one of the services FPWA offer is sexual health education for people with intellectual disabilities, and the promotion of sexuality and disability, I have never felt that there was a chance I would be discriminated against because I can’t shelve the returns on the top shelves..

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