Tag Archives: hypermobility

Blog June, Day Twenty Eight

So I know I didn’t post yesterday, but unlike most of my other missing posts, I have good reason.

I have been diagnosed with Joint Hypermobility Syndrome (JHS), although I suspect I have Ehlers-Danlos Syndrome Type III (hypermobility), also known as EDS. Due to the nature of my disability, a lot of my joints become quite painful, particularly after overuse. I also get tired a lot. Right now I am working for three full days, spend a fourth day doing physio and hydro therapy, and running errands. As it stands, with four full days of activity per week, I am constantly exhausted.

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The power of a diagnosis

As I mentioned in a previous post, I have mobility issues, and regularly use a combination of crutches, a cane, or a wheelchair to get around. This is because if I was on my feet for more than a few minutes, my hips, knees, feet and lower back would start complaining, and then start screaming at me. In other words, it is painful for me to stand for more than a few minutes at a time. And the worst part of it was? I didn’t know why. Every GP and orthopedic specialist I had seen could not explain why. I even once had this doctor insinuate I was faking it, just so I could use a wheelchair.

This week, after months on a waiting list, I saw a rheumatologist. Nice lady too. And within 15 minutes she gave me a diagnosis. Benign Joint Hypermobility, also known as Hypermobility Syndrome.

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